Monday, March 3, 2008
First Week
We made it through the first week. On Friday we had the chance to sit down with Gracie's Doctors for a review. What we do know is that Gracie has asthma. The doctors in Albuquerque kept going back and forth if it was asthma or not. Now there is no doubt it is asthma. The only question now is why does she have asthma, when her lungs are 20% smaller then they should be. So we will spend this week trying to figure out that mystrey. The otheer good news is that they do not think that Gracie has an immune disorder. They feel that the reason Gracie is dropping her tetnius tighters is because of the medicine they keep putting her on to keep her breathing. So it is a bit of a catch. So by the end of this week we should know how to care for Gracie's asthma and how sever it is. We really feel that all of this has been worth what we have learned. We should find out today if they want to do a bronchoscopy test. This will not be an easy test. They will have to sedate Grace and then put a tube down her throut. They will put a small amount of fluid in her lungs and collect some cells to better evalute her lungs and how bad they really are. I am really hoping that they do that test on Wednesday, because Alan will be here. Hopefully I will know today .
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4 comments:
Dear Gracie,
I hope you feel better. I miss playing with you on the playground and inside. I love you!
Love,
Isabella Rose Stock (k5)
That's great news! I'm so glad Alan will be with you soon. Hang tough. HUGS!
Hey there sweeties!°
I´m glad you´ve got some informations! I was thinking of you guys a lot! Well i understood not everything what you wrote but i hope i got the important things!
I wish you good luck with all the things which are comming!
love you guys! Miss you
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