Early Morning Ride!

Gracie has been sick again this week. And as luck would have it, Alan had to go out of town for work. It has been a very difficult week. Gracie started to get sick on Monday. I kept her home and just kept an eye on her. On Tuesday she was a lot worse. I put her on the pulse ox machine that I have for her at the house, just to see where her Oxygen saturation level was. (She needs to be over 90) She was at about 90 to 91. I went about getting the other kids ready for the day. Then I heard the alarm on her machine going off. I ran into her room to see her oxygen level going down. At 77 % I started moving. I had to wake her up and get her moving. Thankfully that brought up again. I called the doctor and we went right in to the doctor. At the Dr's office they got her stable and from there sent us to her specialist. They where having a difficult time keeping her levels above 90. In one last effort to keep her out of the hospital they gave her a high dose of steroids. Thankfully that seemed to work. So after 3 hours at two different Doctors we went home. Wednesday Grace woke up and seemed to be doing much better, so we got everything ready for Valentines Day thinking she would be returning to school. When we went to be Wed. night I put Gracie back on the pulse ox machine in my bed so I could be close, and to be sure she could go to school on Thursday. Starting about 11pm the alarm started going off. For some reason in my sleep I saw her oxygen level was fine and just ignored the alarm for awhile. Finally at about 2 I woke up enough to realize the alarm was going off due to her heart rate was low. I started watching what was going on. At 3am I called our nurse line. She said to call the Dr and see what he thought. So I woke up the Dr and he instructed me to call 911. So I called. After I hung up I went into panic mode. I called Alan and woke him up, then called and woke up two other friends to come and help me. One friend stayed with the other 2 kids, and our other friend followed Grace and I. After running a few tests at the hospital they put a 24 hour monitor on Grace and sent us home. Alan decided to take a flight home. SO we where very happy to have Alan home with us last night. Today (Friday 15) we have an appointment with a pediatric Cardiologist. So we will see how it goes. We just though we would keep everyone posted on how Gracie is doing. We have received so many encouraging emails form all of you. Thank You all so much.